Health Ministry considering setting up a Technical Expert Group on Spinal Muscular Atrophy

The Indian Government has increased funding for rare diseases, especially Spinal Muscular Atrophy (SMA), allocating Rs 82.4 crore this year. Efforts include establishing a Technical Expert Group and pushing for indigenous drug research. Calls for more awareness and budgetary support were made during SMArtCon2024 to aid the over 4,000 children born with SMA annually in India.